Perception and Challenges of Time Management for Caregivers of People with Heart Failure

  1. Cuoco, Angela 1
  2. Younas, Ahtisham 2
  3. Boyne, Josiane 3
  4. Juarez-Vela, Raul 4
  5. M. Rice, Bridgette 5
  6. Vellone, Ercole 16
  7. Durante, Angela 47
  1. 1 Department of Biomedicine and Prevention, University of Rome “Tor Vergata,” Italy.
  2. 2 Memorial University of Newfoundland
    info

    Memorial University of Newfoundland

    San Juan de Terranova, Canadá

    ROR https://ror.org/04haebc03

  3. 3 Department of Cardiology, Maastricht University Medical Center, The Netherlands
  4. 4 Universidad de La Rioja
    info

    Universidad de La Rioja

    Logroño, España

    ROR https://ror.org/0553yr311

  5. 5 Villanova University
    info

    Villanova University

    Radnor, Estados Unidos

    ROR https://ror.org/02g7kd627

  6. 6 Department of Nursing and Obstetrics, Wroclaw Medical University, Poland.
  7. 7 University of Eastern Piedmont Amadeo Avogadro
    info

    University of Eastern Piedmont Amadeo Avogadro

    Vercelli, Italia

    ROR https://ror.org/04387x656

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Journal:
Journal of Cardiovascular Nursing

ISSN: 1550-5049,  0889-4655

Year of publication: 2023

Type: Article

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DOI: 10.1097/JCN.0000000000001027 GOOGLE SCHOLAR lock_openOpen access editor

More publications in: Journal of Cardiovascular Nursing

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Abstract

Background Informal caregivers contribute substantially to the self-care of people with heart failure (HF) by helping with concrete and interpersonal tasks. Time perception and management are essential issues among caregivers. However, investigators have not explored this topic in caregivers of people with HF.Objectives The aim of this study was to describe the perceptions and challenges of the time management experience among caregivers who support the self-care efforts of their relatives with HF.Methods Adult informal caregivers of patients with HF, taking care of the patient for at least 3 months and without cognitive limitations, were recruited from Spain, Italy, and the Netherlands. Data were collected using semistructured interviews. Maryring's qualitative content analysis strategy with both a deductive and an inductive approach was used for analysis.Results We enrolled 50 participants (20 Italians, 19 Spanish, and 11 Dutch). Caregivers had a mean (SD) age of 62.8 (12.8) years and were mostly female (84%). They dedicated 31.2 (SD, 21.7) hours per week to providing caring activities for their patients. After extracting 33 codes from their qualitative interview data, we summarized them into 8 categories and identified 4 main themes: (1) time for yourself, (2) house management, (3) time for the patient (dedicated to directing care), and (4) time for own socialization.Conclusion Caregivers navigate the complexity of time management by balancing dedicated time for supporting patients with HF and their own personal time.

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