Development and psychometric testing of the European Heart Failure Self-Care behaviour scale caregiver version (EHFScB-C)

  1. De Maria, Maddalena 1
  2. Boyne, Josiane 2
  3. Durante, Angela 1
  4. Juarez-Vela, Raul 4
  5. Jaarsma, Tiny 3
  6. Vellone, Ercole 1
  7. Strömberg, Anna 33
  1. 1 Department of Biomedicine and Prevention, University of Rome “Tor Vergata”, Rome, Italy
  2. 2 Department of Cardiology, Maastricht University Medical Center, Maastricht, the Netherlands
  3. 3 Linköping University
    info

    Linköping University

    Linköping, Suecia

    ROR https://ror.org/05ynxx418

  4. 4 Universidad de La Rioja
    info

    Universidad de La Rioja

    Logroño, España

    ROR https://ror.org/0553yr311

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Journal:
Patient Education and Counseling

ISSN: 0738-3991

Year of publication: 2021

Type: Article

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DOI: 10.1016/J.PEC.2021.01.013 GOOGLE SCHOLAR lock_openOpen access editor

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Abstract

BackgroundThe European Heart Failure Self-Care Behaviour Scale (EHFScBS) is used worldwide to measure heart failure (HF) patient self-care, but a caregiver version does not exist.ObjectiveTo develop and test the European HF Self-Care Behaviour Scale for Caregivers (EHFScBS-C) in a population of informal caregivers of HF patients.MethodsThe EHFScBS-C was derived from the EHFScBS to measure the extent to which caregivers contribute to HF patient self-care. The EHFScBS-C was developed in English and then translated into Italian, Spanish and Dutch, after which it was back-translated. EHFScBS-C data were collected from 193 HF caregivers enrolled in Italy, Spain and the Netherlands.ResultsExploratory factor analysis revealed two factors with supportive fit indices (CFI = 0.990; RMSEA = 0.048): caregivers’ contributions to HF self-care related to medical issues, and caregivers’ contributions related to lifestyle. Internal consistency reliability was supported as well (Cronbach’s alpha 0.90 for the overall scale). Construct validity was demonstrated with significant correlations with the Caregiver Preparedness Scale.Conclusion and Practice ImplicationsThe EHFScBS-C has adequate validity and reliability for its use in clinical practice and research to measure the extent to which caregivers contribute to HF patient self-care. The EHFScBS-C can be used in combination with the EHFScBS to conduct dyadic studies.

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